Nebraska's 2nd Annual Walk
for Children with Apraxia
Saturday, September 20, 2014
Grand Island, NE
From the Walk Coordinator:
"I am very honored and excited to be coordinating the 2nd Annual Walk for Children with Apraxia in Nebraska. For those of you not familiar with apraxia, Childhood Apraxia of Speech (CAS) is a neurological motor planning speech disorder. Children with CAS have difficulty in speech production, specifically with sequencing and forming sounds. They know what they want to say but their brain has trouble sending the signal to the muscles of the mouth needed for speech. There is no cure or medication for CAS. The only treatment option is intense, frequent speech therapy.
I am coordinating this special event in honor of our son, Jagger. Jagger is a handsome, happy child, who is so determined and gives the best hugs. We noticed very early that Jagger was a quiet baby. He did not babble or make any sounds besides grunting and crying. He was even a late crawler and walker. At first we just thought he was a "late bloomer". We were also told by everyone that he was just a boy, he was a second child and that he would talk when he was ready. That all changed when Jagger was 18 months old and we realized that his vocabulary was extremely behind his peers. After many evaluations and trips to different doctors and specialists, Jagger began speech therapy both through early intervention in our home and through a private speech therapist with a diagnosis of "suspected" Childhood Apraxia of Speech. It was not until Jagger was 3.5 years old that he had enough speech sound inventory for an official diagnosis of CAS. Jagger has made phenomenal progress and we are so proud of his achievements. He continues to receive speech therapy through private practice and his school system. Jagger started mainstream Kindergarten this year. We as a family, continue to do all we can to help Jagger find his voice, raise awareness and educate our school system, community, family and friends about apraxia.
We invite you all to come join us as we walk to support Jagger and other children with CAS on Saturday, September 20, 2014 from 10am-1pm at Stolley Park in Grand Island, NE.
The walk is being held to benefit the Childhood Apraxia of Speech Association of North America (CASANA). All proceeds will benefit apraxia research and programs."
Please note: The deadline to register and be guaranteed an official walk t-shirt in your size is Sunday, August 24, 2014.
IMPORTANT - Did you register a child with apraxia of speech? If so, please e-mail the following: child's first and last name, child's age, and your Walk name to Justin LeWinter at firstname.lastname@example.org by September 10, 2014. We have a special gift to present to each child on the day of the Walk and want to make sure we have enough! Thanks!
For more information contact Walk Coordinator: