Our family is participating in the Apraxia Walk in September. As many of you know, Ian was diagnosed with this at a very young age. Apraxia is a speech disorder where we literally have to teach his muscles how to make the sounds. It's not very common and we literally have worked our butts off to make sure he had every opportunity possible to succeed. Thankfully, we are on the right track. The main problem was finding the right therapist for him as many speech therapists are not trained in Apraxia. Luckily, we were able to secure the best one in Buffalo and I told her I would make whatever time she could see him work. However, I spent much of my time during COVID on teletherapy, with this amazing P.R.O.M.P.T therapist, participating in all his speech lessons so I could make sure he would succeed. Then once in person, I would drive him to his therapy, sit in the driveway while he had his speech and then drive him home....3x a week totaling about 2 hours each time. Our speech therapist, Leah Blum, has been the most important person in making sure Ian had a successful outcome. Please consider donating to our team to help raise awareness and resources for this diagnosis. The walk is in September and we welcome anyone that wants to join our team.
I walk to support all children diagnosed with apraxia of speech - our Apraxia Stars. To show these children they are not alone and to acknowledge all the hard work they must do to overcome communication challenges that affect their day-to-day lives.
I walk to raise funds for the mission of Apraxia Kids – to strengthen the support systems in the lives of children with apraxia of speech by educating professionals and families; facilitating community engagement and outreach; and investing in the future through advocacy and research.
Please help me meet my fundraising goal by making a donation now or by joining our team. You, too, can make an impact for children and families affected by apraxia!
I believe, “Every child deserves a voice”.