2024 Twin Cities Walk for Apraxia

Our Apraxia Star - Seiver!
Our Apraxia Star - Seiver!

Seiver's Super Stars

Do you believe, “Every Child Deserves a Voice?”

We do… and we invite you to join our team at the Walk for Apraxia.  By joining our team, you will walk beside us as we celebrate all the Apraxia Stars and support our efforts to raise funds for Apraxia Kids.  

Unable to walk?  That’s ok!  You can still participate in helping our team meet our fundraising goal by making a donation now.

Seiver's Story:

Around the age of 2, we became aware of delays in Seiver's speech. He started speech services at this time, but it wasn't until a few months in and doing some research that I first heard about Apraxia. We didn't think much of it at the time as we were seeing receptive language skills and no laging develop in other areas. As the year continued, it became prevalent that we needed to seek additional services and we did so through private practice. After another 6 months with two different therapists we still were searching for answers. Seiver was not verbally communicating at school with his teachers or peers, he had become a passive observer, and observations by his therapists were showing more concerns.  We started diving in deeper to find out a bit more about Apraxia.  It was mid-April 2022 when a weight was lifted from our shoulders as we had an answer for our little man. The diagnosis of Childhood Apraxia of Speech and Phonological Speech Disorder was made. Now it was time to clear the path and find the right type of therapy to help him. This came as a challenge as Apraxia is a neurological motor planning disorder and needs a specific type of treatment that is intensive.  

From 2022-2024 we have been working with with two speech therapists that have been amazing.  Seiver was going to four sessions a week with his private therapist, Ms. Debbie, and a school therapist, Ms. Tracy.  He has and continues to work extremely hard!  His dedication paid off when he was exited from private practice speech this past spring.  We are so proud of him. 

 

Seiver made a big leap and now started kindergarten this year.  He has broken out of his shell socially and becomes more comfortable everyday.  We are amazed by his resilience.  Seeing him communicate with his friends and family makes my heart warm.  

We know that many times there is another neurological disorder that is associated with Apraxia.  Motor planning is something that we keep a closer eye on for that reason.  He puts a smile on our faces everyday. 

We are proud of our little Apraxia Warrior!

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