We Walk for Apraxia to show our support for children with apraxia, but especially for our son Carter who constantly demonstrates the strength and tenacity of children with Apraxia. We've been on this long road of learning to speak since Carter was 10 months old,when we first noticed excessive grunting and lack of babbling any range of sounds. Carter is almost seven now and we couldn't be more proud of him and the progress he has made.
If you're unfamiliar with Childhood Apraxia of Speech, basically rather than a speech delay, it can be described as a nuerological disorder which makes it very difficult for the brain to send messages to the muscles of the mouth to direct it to produce proper sounds. Some children may not say their first word until five years old, or even beyond.
It is only recently that we have learned what a life without “zillions” of appointments is like. Recently Carter has been able to go from multiple speech sessions per week, down to just one per week at his school. Sometimes this condition is also accompanied with other things such a sensory and gross/fine motor processing issues, which was the case for Carter earlier on. Consequently, he received some assistance with sensory processing from Occupational Therapists in the past. Currently we feel very fortunate and grateful, as Carter is speaking sentences that are clear and understood by others. That is not to say the therapy is done. He will continue to experience time periods of regression and times when the characteristics of this condition present itself more than others. When he is tired and/or sick, we may notice an increase in errors, difficulty producing certain sounds, increased frustration and an increase in stuttering. Adults with Apraxia have reported experiencing this difficulty well into adulthood. For this reason we continue to stay vigilant in supporting CASANA (Childhood Apraxia of Speech Association), so they may continue to support services and advances in research for these individuals.
Every dollar raised helps support Apraxia Kids. I believe in the work Apraxia Kids does to strengthen the support systems in the lives of children with apraxia so that each child is afforded their best opportunity to develop to their full potential.
We need your help. Would you please consider making a donation? (Your donation goes to fund amazing programs like iPads for children who need it to communicate, parent and speech therapist workshops, research, and a program to assist families in need of help with speech therapy costs.)
If you're not able to donate, please come walk with us on October 26th in Roseville with our team, Carter's Cali Crew! If nothing else, it would be a great time to spend time together. Thank you so much for your support.
Averi and Chris