Welcome to our personal fundraising page for the Walk for Apraxia. Our son Colin, was diagnosed with CAS (Childhood Apraxia of Speech) in January 2018 by a Developmental Pediatrician at Lurie's Children's Hospital. Colin never really babbled and did not talk for a long time. He started speech therapy through Early Intervention in March 2017, and after receiving 6 months of speech therapy once a week he was barely making any progress. We knew that something else was wrong besides just a normal speech delay and the term Apraxia was brought up. After talking with the E.I team and Colin's pediatrician we moved forward with having him evaluated by a medical diagnostic team. That is when we met Dr. Gray and received the formal diagnosis of Apraxia of Speech. We as a family have had many ups and downs and lots of tears shed but knowing Colin has Apraxia has actually given us some clarity and knowing what Colin needs to get the proper treatment to overcome this. Everyday we learn more CAS but there is more to learn and we need everyone's help to spread the word for Colin.
If you unfamilair with Apraxia of Speech this a brief defintion. Children with apraxia of speech have extreme difficulty learning to clearly say syllables and words. Although a child with apraxia understands language and knows the words that he or she would like to say, the brain does not send accurate messages to the muscles of the lips, tongue and jaw, telling those muscles how, when, and in what order to move so that those mouth parts can produce the words clearly. With early intervention and appropriate, intensive speech therapy, children with apraxia can and do improve in their speech and communication.
So PLEASE join us on our FIRST walk and join our Stomp out Apraxia with Colin!!! Everyone is welcomed and we would love to have everyone support our son Colin and all the other children that are affected by CAS. We are the voice for Colin and all the other children. So please join us with Apraxia Kids in its efforts to provide support to children and families on their journey with apraxia. You can participate even if you are unable to be at the Walk by making a donation to support our efforts. Any dollar raised helps support Apraxia Kids. We believe in the work Apraxia Kids does to strengthen the support systems in the lives of children with apraxia so that each child is afforded their best opportunity to develop to their full potential.
Check out how are team is striving to reach our goal. Anything helps and your donation goes to fund amazing programs like iPads for children who need it to communicate, parent and speech therapist workshops, research, and a program to assist families in need with speech therapy costs.
We are Colin's voice and we thank you from the bottom of our hearts for your support in this very important cause.