I am so excited to announce that I am helping organize this year's 2019 DC Walk for Apraxia! As many of you know, Huxley was diagnosed with Childhood Apraxia of Speech two years ago. CAS is a rare, often times severe, neurological speech disorder. When I became a mother, I never imagined the possibility that my child would not develop the ability to speak. Since his diagnosis two years ago, Huxley has been receiving intensive, specialized speech therapy 2 days a week. It has been nothing short of life changing for our family. I may spend more time in therapy clinics than I do with my friends or family, but because of Huxley's hard work he now has more words than I can keep track of.
Our journey with apraxia has been challenging, but we are here to share our story and raise awareness one day at a time. We would love your support on Sunday, October 6th to celebrate Huxley and all of the children with apraxia who are working so hard to find their voice. Because CAS is so rare, this is one of the few times we don't feel so alone in our journey. It gives us hope. I am happy to put my energy into something that means so much to my family. Apraxia Kids is the only organization dedicated to helping children and their families on their journey with apraxia. They raise money each year through these walks to fund amazing programs like iPads for children who need one to communicate, parent and speech therapist workshops, much needed research, and various financial aid programs to assist families in need with speech therapy costs. Thanks to the scholarships made available by Apraxia Kids, I was able to attend last year's National Conference!
We walk because the need for Apraxia awareness, education, research, treatment, and support is SO great. We walk because without increased advocacy and support the lack of availability and access to effective therapies and treatments will continue to leave our children in silent isolation. We walk because families with hope, resources, empowerment, and support will inevitably succeed, no matter how great the obstacles in the way. We walk because we believe every single child deserves whatever help necessary to find their voice.