Why we walk for Apraxia Kids!
We walk to support all children diagnosed with apraxia of speech - our Apraxia Stars. To show these children they are not alone and to acknowledge all the hard work they must do to overcome communication challenges that affect their day-to-day lives.
We walk to raise funds for the mission of Apraxia Kids – to strengthen the support systems in the lives of children with apraxia of speech by educating professionals and families; facilitating community engagement and outreach; and investing in the future through advocacy and research.
After getting a diagnosis of childhood apraxia of speech, it can be a lot to take in. I am BEYOND greatful for the information, resources and materials provided by Apraxia Kids. I believe it has helped us tremendously to get Gunnar the help & resources he needs!
Imagine having all of your regular thoughts, needs, wants fears... and not being able to communicate any of them. Having a brain that funcations at full capacity, but not having the words to let those around you know your thoughts. Your needs, to say simple sentences like "I love you" or "I'm hurt".
Please help us meet our fundraising goal by making a donation now or by joining the team! By supporting Apraxia Kids, you too, can make an impact for children and families affected by apraxia!
We believe, “Every child deserves a voice”.
My Personal Web Log
Slow and steady wins the race!
We are making our way towards our goal!... I can tell you first hand, when your child is diagnosed with apraxia of speech, it is a very confusing time. One of the first thoughts I think every parent has is; okay, so will my child ever be able to speak? While the answer is generally "yes", it's not an easy 'yes' by any means.
I have received some really great questions about what "this is" in regards to the fundraiser and Apraxia Kids as a whole. So here is a "little" bit of information on what this fabulous organization has to offer!! What Apraxia Kids does and why we are supporting them. Again from first hand experience, without this organization I would have and would still feel lost. The resources they provide to families is immeasurable. I am beyond grateful and thankful to have found them as a resource at the very beginning of our journey.
Support for Children and Families -- Apraxia Kids works on a national and local level to provide support to children with apraxia of speech and their families. When a family is first diagnosed with apraxia, they may feel alone, confused, or frustrated. Apraxia Kids works to support families in a variety of ways to help them navigate their journey. They provide resources and information through their website, article library, print materials, online support groups, and more.
Education -- Apraxia Kids is nationally-recognized for their advanced training and clinical expertise in childhood apraxia of speech. They are committed to providing evidence-based information on childhood apraxia of speech to parents and professionals through their core programs and research grants. Each year Apraxia Kids provides direct training and education to hundreds of speech professionals and families. They offer a full range of educational options that provides the latest information on understanding, diagnosing, and treating children with apraxia of speech. Apraxia Kids offers online webinars, regional workshops, intensive trainings, and the annual national conference in order to provide continuing education. In addition, Apraxia Kids funds research into diagnosis and treatment of CAS to further advancement in the field.
Raising Awareness -- Working collectively with volunteers, Apraxia Kids is spreading awareness of their organization to those impacted by childhood apraxia of speech. While the understanding of apraxia has come a long way since their beginning in 2000, it is still a little-known disorder that affects over 300,000 children across the US. Apraxia Kids continually works to bring apraxia into the light so that every new family diagnosed may have an easier journey to find answers and gain the support necessary for successful treatment of apraxia. The more familiar the public becomes with apraxia, the stronger the resources and support for children and families will become.
The Walk for Apraxia is their biggest event for raising awareness about CAS at the grassroots level. Every year, more than 10,000 individuals come together to celebrate our Apraxia Stars and even more learn about apraxia when they donate to support their friends and families. Our first walk occurred in 2008 in Pittsburgh; today the Walk for Apraxia spans 70+ cities!
IF YOU'RE STILL READING THIS!!! lol sign up for the walk with us! You don't even have to make a monetary donation. The walk for this part of the fundraiser is virtual so other than typing your name, your level of commitment of support is pretty limited 😂. I would LOVE to see our team numbers grow!!
by Ruthie Lichtenwaldt on Thu, Jul 15, 2021 @ 3:15 PM
Gunnar's reaction to the walk: Who do you want to invite?
Trying to convince a strong willed 4 year old several times a week that he has to stop everything to go to speech and work so hard can be a difficult task. More often than I would like to admit, it can be a full blown challenge. Thankfully Gunnar has an *AMAZING* SLP team at Team 4 Kids working to make it all work (we've even done speech in the hallway floor hardly making it inside the office's door! from the 100 degrees outside).
On what was seeming like another very difficult day going to speech I started explaining to Gunnar about Apraxia Kids. What the organization does, what they stand for, who they support, why they raise awareness and told him about the walk that they hold. I told him that our local walk in Phoenix, is for some reason only being held virtually this year. I explained that online they are encouraging us still to get together with some of our friends or family members so that we can celebrate him and all of HIS hard work, his face lit up! Generally Gunnar doesn't like to be around a whole lot of people so I wasn't sure if this was something he would want to do. When I asked him though he very excitedly told me he does want to! As I may have a tendency to "over do" things.. I asked him, "do you want just a couple of friends to come over and walk and celebrate you? Or should we have a party and invite the whole City of Surprise? He laughed one of his delightful Gunnar laughs and said he wanted the whole city! As we pulled into speech he hopped out of the car without a hesitation. When he say his teacher, he practically abandoned me at front desk and didn't even look back to acknowledge my existence. There was work to be done and a party to be planned!
For many people one of their first questions they have is if Gunnar will ever be able to speak "normally". From everything I have found in researching Apraxia this depends very much on certain factors. It depends on if the patient has other comorbidities, which at this point there are none suspected. How well a patient does their treatments, how much practice they are able to get in at home, early intervention, if they are resistant to treatment or not, and maybe a couple others. For the last 7 months that we have been on this road, Gunnar has dug his heals in. For those of you who know Gunnar, he is very strong willed and thinks very independently. His participation in speech has been pretty limited, overall not willing to cooperate. You may as well just flip a coin on if he will be willing to go on that day or not.
But this, this walk has given us new hope! This walk has given him something to work for. He is excited to have his own voice. He was SO excited to know that spreading awareness meant that other people would know that just because he has a hard time making his sounds and making his words, that he is still smart and knows exactly what people are talking about.
by Ruthie Lichtenwaldt on Fri, Jul 02, 2021 @ 6:44 PM