2021 Akron Walk for Apraxia

Emerson's Enduring Endeavor

 

  2021 Akron Walk for Apraxia

Emerson's Enduring Endeavor

 

Date: 9/25/2021

Venue: Reservoir Park 905 Sippo Blvd NE     Massillon, OH 44646

Time: 10:00 AM

 

Do you believe "Every Child Deserves a Voice?" We do!!!

Wally and I walk to support our Apraxia Star Emerson and all children diagnosed with apraxia of speech - our Apraxia Stars. By joining our team, you will walk beside us as we celebrate Emerson and all the Apraxia Stars. We will show these children they are not alone and acknowledge all the hard work they must do to overcome communication challenges that affect their day-to-day lives.

What is Childhood apraxia of speech (CAS)?

*CAS is a neurological speech disorder involving the ability to motor plan the oral movements needed to produce words.

*Children with this diagnosis have difficulty learning or carrying out the complex sequenced movements that are necessary for intelligble speech.

*CAS affects 1 in 1000 children.

*CAS is a lifelong disorder. There is no cure.

*Children with CAS are at a high risk for having later language based academic difficulties (reading, writing, and spelling)

*Children with CAS often have co-existing conditions; CAS rarely occurs in isolation.

*Intensive Speech therapy is the ONLY evidence-based treatment for CAS.

 

At around the age of 2, our kind, smart, funny, and beautiful little girl Emerson was diagnosed with Childhood Apraxia of Speech.  Emerson's talented and dedicated Speech Language Pathologist, Alayna, relayed the news to us after working with her since the age of 1. We learned through Alayna, countless hours of research, webinars, and conversations with other parents of children with CAS, that Emerson has one of the most severe speech disorders in children.  Not only that, but a disorder that children don't outgrow. Children with CAS require frequent and intensive therapy. Around the age of 2, Emerson started private therapy with Alayna twice a week in addition to the speech therapy she receives at preschool.  Every day, Emerson has to work so incredibly hard to connect the words from her brain to her mouth that for most of us just comes so easily and naturally.

Emerson inspires us every single day. She has faced and will continue to face obstacles and challenges because of Apraxia. These obstacles and challenges that she faces in her every day speech have not stopped her! Emerson is an Apraxia Warrior! She is the embodiment of inspiration, perserverance, and resilience. Every single day, Wally and I are in awe of her determination and her fight to be anything but silent.

The obstacles and challenges will not only have an affect on Emerson's speech but also in various academic areas as she progresses through school. In addition, Emerson will most likely face negative and hurtful comments from children throughout her school years simply because of the way she talks. We will have to teach Emerson that as kind as she might be to someone, they may still want to hurt her. We will have to teach her that even though there may be children who hurt her, she is smart, kind, funny, and a wonderful human being and that she has to have enough strength and faith to believe that and never, ever change.

We will walk to raise funds for the mission of Apraxia Kids – to strengthen the support systems in the lives of children with apraxia of speech by educating professionals and families; facilitating community engagement and outreach; and investing in the future through advocacy and research.

 

Please join our team!!!  THERE IS NO OBLIGATION TO WALK EVEN IF YOU REGISTER TO JOIN THE TEAM! It simply shows your support for Emerson's Enduring Endeavor. Registration is FREE - click JOIN TEAM.

If you would like to help us meet our fundraising goal you can do that after joining the team or clicking DONATE NOW.

We appreciate any other support you can offer toward our team effort. If you would prefer, you can just send a simple shout out to Emerson at tarasenk@yahoo.com.  We will share the messages with her! 

Can't make the walk?  Feel free to celebrate virtually from the safety of your own home. Please remember to still register. Registered walkers can still choose to attend virtually by watching the Virtual Ceremony.

Wally, Emerson and I thank you and are grateful for your support.

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